Health Links: WebSites For More Information:
The Registry encourages readers to review these sites and discuss these topics in further detail with your medical providers. The Registry is not responsible for the quality of information provided at external sites.
Iowa links
Iowa Registry for Congenital and Inherited Disorders (Home Page)
https://ircid.public-health.uiowa.edu/
The University of Iowa and University of Iowa Health Care
http://www.medicine.uiowa.edu/
https://uihc.org/medical-services (DEPARTMENTS)
https://www.uichildrens.org/ (PEDIATRICS)
https://uihc.org/ucedd/iowa-healthy-child-development-initiative (CHILD HEALTH DEVELOPMENT)
https://uihc.org/pregnancy-care-clinic (PREGNANCY & CHILDBIRTH)
https://www.uichildrens.org/genetics/ (GENETICS & BIRTH DEFECTS)
Children's Miracle Network: IOWA
http://www.uifoundation.org/cmn/ (CHILDREN'S MIRACLE NETWORK)
Virtual Hospital / UI Health Library
https://uihc.org/health-library
Iowa Department of Public Health
State Department of Education:
Special Education
https://www.educateiowa.gov/
State Agency for the Visually Impaired
Autism Society of IA
Brain Injury Alliance Iowa
Epilepsy Foundation
Arc of Iowa (Persons with Mental Retardation)
Spina Bifida Association of America
http://spinabifidaassociation.org/
Technology-Related Assistance
Iowa Compass (information and referral services)
Healthy Families Line (Telephone Number): Information and Referral Services
1-800-369-BABY or 1-800-369-2229
United States links
Alliance of Genetic Support Groups
http://www.geneticalliance.org
American Academy of Pediatrics
Child Statistics
Cleft Palate Support, Research and Prevention
GeneTests (formerly GeneClinics)
Human Genome Epidemiology Network (HuGENet)
http://www.cdc.gov/Genomics/hugenet/default.htm
International Clearinghouse for Birth Defects
National Association for the Education of Young Children
KidNeeds.com (information and resource center)
March of Dimes
National Birth Defects Prevention Network
National Center for Biotechnology Information Online Mendelian Inheritance in Man (OMIM)
http://www.ncbi.nlm.nih.gov/omim
National Institute of Health
National Organization for Rare Disorders (NORD)
National Society of Genetic Counselors
Phenylketonuria Organization
Teratology Society
Birth Defect Research for Children, Inc.
National Organization on Fetal Alcohol Syndrome
https://rarediseases.org/organizations/national-organization-on-fetal-alcohol-syndrome/
Waisman Center: University of Wisconsin
National Birth Defects Prevention Study
https://www.cdc.gov/ncbddd/birthdefects/nbdps.html
Birth Defects Study to Evaluate Pregnancy Exposures